Get to know Casa Santa Teresinha
It all started with a sensitive look from Dr. Régia Celli Patriota de Sica who captured the beauty, in addition to the skin. Thus it was born the exhibition “Beyond the Skin: the Beauty of the Soul and the Family”, under the curatorship of Alícia Peres.
The knowledge of the drama experienced by those families touched the hearts of many people, especially a group of social entrepreneurs, formed by professionals from different areas: medical, legal, social assistance, nursing, social communication, administration, finance, among others, who felt compelled to act to change the context in which people with congenital skin diseases are inserted.
From that moment on, we started to plan the next steps, such as the viability of financial resources and people to continue the project of informing and sensitizing the population, aiming to contribute to end the prejudice against people with skin diseases, help remove thousands of children and adolescents from the enclosure, and also help provide adequate medical, psychological and social assistance so people with these diseases would have a better quality of life.
On December 4, 2013, the Brazilian Institute of Support for People with Genodermatoses – Ibagen was founded, with the purpose of fighting prejudice, seeking to raise the quality of life of children and adolescents with genodermatoses and encouraging, together with the competent agencies, scientific research and the implementation of measures to treat congenital skin diseases.