Hello and welcome to this space of IBAGEN!
Here we are going to gather reports of children and young people with genodermatoses. Through the characters you are going to meet in the next posts, it will be possible to find out how it is the day to day of who has the marks of these diseases on the skin.
We need to touch a sore spot – ours not theirs – to open a more humane discussion on the importance of this matter. We believe that, when we are in touch with real stories, it is possible to fight prejudice, which keeps people out of social contact, many times not knowing what these diseases really are.
Besides, we are going to bring news on research and studies carried out and advancements which come up in treatments. We want it to be a channel of Exchange.
Will you come with us?