Get to know Saint Thérèse Center

The starting point was the “Além da Pele: a Beleza da Alma e da Família” (Beyond the Skin: the Beauty of the Soul and the Family) exhibition, by Dr. Régia Celli Patriota de Sica, curated by Alícia Peres. The understanding of the drama experienced by those families touched the hearts of many people, especially a group of social entrepreneurs, consisting of professionals from different areas (medicine, legal, social work, nursing, social communication, finance, among others), who felt compelled to change the context in which people with congenital skin diseases are inserted. That was the moment to plan the next steps, such as the viabilization of human and financial resources to carry on with the project of informing and sensitizing the population, aiming at helping to reduce the prejudice against people with skin diseases, helping take thousands of children and teenagers out of isolation, and also to provide proper medical, psychological and social support to them. On December 4th, 2013, the Instituto Brasileiro de Apoio aos Portadores de Genodermatoses (Brazilian Institute for Support to Patients with Genodermatoses) – IBAGEN – was founded, aiming at fighting against prejudice, improving the quality of life of children and adolescents with genodermatoses, and encouraging, with the competent agencies, scientific research and the implementation of measures for the treatment of congenital skin diseases.

Our Objectives

• To elaborate programs and projects with the aim of assuring people with genodermatoses their fundamental and inherent human rights, giving them the opportunities to achieve physical, mental, moral, spiritual and social development, and preserving their dignity and freedom;

• To develop means and conditions which support the production of projects to be broadcast on electronic and audiovisual means, capable of stimulating the fight against prejudice against people with genodermatoses;

• To stablish partnerships, agreements and adjustments with official or private national or foreign educational or public health institutions, with the objective of promoting scientific research aiming at clarifying the etiology, treatment and prevention of genodermatoses;

• To act in close collaboration with educational institutions in order to support scientific research in the context of our statutory objectives;

• To collaborate, whenever possible, by sending representatives to national and international congresses, seminars, symposiums, conferences or scientific meetings, in which genodermatoses related topics are discussed or which are of interest to the Institute.

• To extend, whenever possible, our activities to the various cities in the State of São Paulo and other States in Brazil, including to assist and contribute with similar institutions;

• To promote volunteering, ethics, peace, citizenship, human rights, democracy and other universal values;

• To design cultural projects, such as exhibitions and publications, with public and free access, with the purpose of raising awareness about the serious problems faced by people with genodermatoses, and reducing all forms of discrimination and prejudice against them.

Administrative Board

Administrative Board

President
Dr. Régia Celli Patriota de Sica

Members
Dr. Celso Luiz Borrelli
Prof. Gaspare Saraceno
Dr. Isaura Cristina Soares de Miranda
Margarida Cecilia Moreira da Silva Manfredini
Rogério Ribeiro Patriota
Roseane Ribeiro Patriota

Technical Advisory Board

President
Prof. Dr. Cyro Festa Neto

Members
Ligia Maria Quitério
Dr. Luciana de Paula Samorano Lima
Dr. Luis Antonio Ribeiro Torezan
Rosa Makie Ishii
Dr. Vera Lúcia Moyses Borrelli
Prof. Dr. Zilda Najjar Prado de Oliveira

Supervisory Board

President
Richard Freeman Lark Jr

Members
Cristiano Moyses Borrelli
Guilherme Moyses Borrelli
Paulo Sérgio Zembruski
Sonaira San Pedro Bocchi